Well, not sure what to write really.....whenever you think it's bad, it gets worse !
Yesterday Karena had some energy and was on form for at least a few hours in the day, and she slept really well last night. Today however she has had very little energy and has been sleeping for 80%+ of the time. It seems like a sudden drop in energy levels just within a day. It's very tough even though the medics told us this would happen! So whilst the children saw her after school and all evening, she didn't have a lot of beans to be able to interract much with them.
Appreciating your ongoing prayers for Karena...today seems like another step change for the worse.